Children

(414) 266-2000

Next Steps Survivorship Program

As a survivor, or a parent of a survivor of cancer or bone marrow transplant (BMT), you may wonder how diagnosis or treatment will affect you or your child’s health and well-being in the future. When cancer treatment is over, our relationship with you continues. 

Our survivorship program was established in May 2001 and sees over 200 survivors every year. The program helps patients and families to identify and monitor possible late effects, educates on ways to maintain a healthy lifestyle based on risk factors, and empowers survivors to advocate for their health.

Our goal is to help survivors live happy, healthy lives.

Why choose our survivorship program?

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  •  Our patient care leads the nation. Our staff and providers are some of the best-known cancer survivorship experts in the country, and their continued research informs the care we provide to families every day.
  • A team approach. Our multidisciplinary team includes doctors, advanced practice providers, nurse educators, psychologists, social workers, schoolteachers and nutritionists – all working in partnership with you and your primary care doctor.
  • Community support. Our program offers a survivorship community navigator, a unique role that helps families access educational, social and job resources in their own communities.
  • Fertility support. Our fertility navigator has the skill and experience to help patients who are considering having children now or in the future.
  • Patient education and advocacy. Survivor empowerment to advocate for future health care needs by providing education; a passport, which is a wallet size summary of care with long-term follow up recommendations; and support to transition into primary care. 
  • Research innovation. Enhance and expand research initiatives focused on survivorship while actively working with Children’s Oncology Group and Pediatric Blood & Marrow Transplant Consortium.

 

Our survivorship programs

Bridge to Next Steps Program is a program that helps patients and families as they transition from active treatment into post-therapy care. 

Bridge to Next Steps

The end of cancer treatment is an emotional time for patients and families. During the transition period, we help to prepare for your child’s life after cancer treatment, and also reconnect you with your primary care provider to build care and support beyond cancer care.

The program consists of two specialized visits where you will meet with a survivorship provider and a psychologist to provide education, summary of care, and support.

Survivorship care (Next Steps Clinic) is a long-term follow up program that cares for cancer and BMT survivors who:

  • Received care at Children’s or elsewhere
  • Were diagnosed before age 30, regardless of current age
  • Completed treatment a minimum of 2 years ago
  • Received a bone marrow transplant more than two years ago

Team members provide specialized care and information needed to monitor and manage possible late effects of treatment. Visits are individualized to each patient, and may include a variety of team members. Care includes:

  • Educating survivors about the therapy they received and recommended follow up
  • Creating a plan to address possible effects of treatment
  • Giving guidance on healthy lifestyle and good nutrition
  • Connecting survivors with community resources
  • Working with survivors, their families and their primary care doctor to meet ongoing needs

Our specialists

Psychology

Bingen
Kristin Bingen, PhD

Hoag
Jenny Hoag, PhD

Karst
Jeffrey Karst, PhD

Survivorship Community Navigator

Jocelyn Morin
Jocelyn Morin, MPH

Nurse Coordinator

Julie Nichols
Julie Nichols, RN, BSN

Advanced Practice Providers

Anderson
Lynnette Anderson, APNP

Schmidt
Debra Schmidt, APNP

Survivorship Medical Providers

Phelan
Rachel Phelan, MD, MPH

Schwartz
Cindy Schwartz, MD, MPH

Social Work

Dodds
Sheila Dodds

Thompson
Paula Thompson

Nutrition

Hettich
Kyndal Hettich

School Teachers

Sabine Larson
Sabine Larson

Trocchio
Michael Trocchio

Beronja
Teresa Beronja

Pam Niezgoda
Pam Niezgoda

 

Helpful survivorship resources

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Contact us

If you need more information or if you would like to make an appointment, give us a call.

(414) 266-2774

Request Survivorship Team Member Call

Has it been a long time since you’ve been seen? Provide us with your contact information, and our team will reach out to you shortly.

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